More About Sickle-Cell Research and Resources

This is a companion piece to Did You Know About the Sickle-Cell Cure?

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1. Reach federal officials in charge of sickle-cell funding:

Francis Collins, M.D., director, the National Institutes of Health: francis.collins@nih.gov

Susan Shurin, M.D., director, the National Heart, Lung, and Blood Institute: Susan.Shurin@nih.hhs.gov

2. Track federal sickle-cell research and funding:

NIH sickle-cell research-project database

Sickle-cell funding (scroll down to “Sickle Cell Disease”)

3. Link with sickle-cell patient communities:

Break Sickle Silence on Facebook

The Sickle Cell Disease Association of America Inc.

Sickle Cell Warriors on Facebook

Sickle Cell Disease Community Advocates Inc.

The SCD Soldier Network Inc. on Facebook

4. Learn how to work with local hospitals for better care:

National Patient Advocate Foundation

5. Check Medicaid eligibility and special programs for children and adults in your state.