They Were Young, Active and Suffering From Heart Failure

Your Take: Richmond, Va., twins got a shocking diagnosis and joined the large number of African Americans affected by heart disease.

Twin sisters Kimberly Ketter and Shaun Rivers
Twin sisters Kimberly Ketter and Shaun Rivers Courtesy of Kim Ketter and Shaun Rivers

As twins, Kimberly Ketter and Shaun Rivers have been through just about everything together: first day of school, learning to drive, graduation.

But there was one moment that altered the lives of the sisters from Richmond, Va.

Ketter first suspected something was wrong in May 2009 when a routine climb up the stairs caused her to become short of breath and fatigued. Then she did the opposite of the advice she typically gives her patients: The veteran nurse dismissed her symptoms.

The next day at work, Ketter suddenly became ill. Her heart was racing and she was short of breath and dizzy. She saw her family doctor and then a cardiologist. A battery of tests found that Ketter had heart failure.

“I said, ‘Excuse me?’ I didn’t have high blood pressure. I didn’t have diabetes. I was an athlete in high school. It just wasn’t possible,” Ketter said. “When I was told my ejection fraction, the tears came. I had too much left to do with my life.”

The ejection fraction, or EF, measures how well the heart pumps blood out of the heart, and EF percentage is used to diagnose and help track a person’s degree of heart failure. A normal heart’s ejection fraction ranges from 55 to 70. Ketter’s EF was 20.

Concerned the problem might be genetic, Ketter urged Rivers, also a nurse, to get tested. A week later, Rivers was diagnosed with heart failure. Her EF was 30. Both sisters were 40 years old at the time.

“I was in disbelief,” Rivers said. “I went through the stages of grieving. The only comfort was knowing I was going through this with my sister. I knew we could get through it if we got through it together.”

Research shows African Americans are disproportionately affected by heart failure (pdf), with incidence being roughly double that of whites. African Americans are also more likely than whites to develop heart failure before age 50.

Ketter and Rivers, now 47, are vigilant in taking care of themselves—and each other. They both take several medications daily, which they’ve dubbed their “keep-Kim-and-Shaun-alive pills.” They also closely monitor their diets and visit their doctor regularly.